Specialists tend to concentrate on just one ‘bit’ of your child; speech therapists focus on communication, physiotherapists on movement, and so on. This doesn’t mean they’re not interested in your child as a whole person, but the fact is that parents are the people who know the most about their own children. You see your child every day, you know what treatments he or she is receiving and you know how they affect your child. You are probably the one constant figure in your child’s care, and you understand them better than anyone else. With this unique knowledge, you should expect to be treated by professionals as a respected and valued partner in all aspects of your child’s care.
“Nobody told us so many people could be involved in treating our children. Someone we know counted 22 appointments in two months! Sometimes it can feel like being your child’s personal manager, juggling appointments and supervising treatment at home.”